El impacto del ejercicio y la forma física en la mejora de los resultados de los pacientes
«Soy consciente de que soy única»: el podcast de phaware® «
», episodio 593 — Dra. Lana Melendres-Groves
A los pacientes con hipertensión pulmonar a menudo se les recetan medicamentos potentes, pero rara vez algo igual de transformador: el ejercicio físico. La Dra. Lana Melendres-Groves revela una verdad impactante: menos de la mitad de los pacientes con HP son derivados a rehabilitación pulmonar, a pesar de que las investigaciones demuestran que esta puede mejorar drásticamente la fuerza, la respiración y la calidad de vida. Esta «receta» que falta podría ser la que devuelva la vida a los pacientes.
Participa en la carrera/caminata «PHenomenal Hope Run/Walk» — Nuevo México, el sábado 17 de octubre a las 10:00 h.
Por qué un trabajador social podría ser la persona más importante del equipo de atención a la hipertensión pulmonar
«Soy consciente de que soy diferente»: el podcast de phaware® «
», episodio 580 — Evan Holm, LMSW, SWCM
Cuando la hipertensión pulmonar recibe por fin un nombre, el miedo se apodera rápidamente de uno. El trabajador social Evan Holm suele ser la primera persona en la que se apoyan los pacientes tras someterse a un cateterismo cardíaco derecho en el Hospital de la Universidad de Nuevo México. Como líder de un grupo de apoyo para la HAP, le apasiona brindar apoyo emocional y educativo a los pacientes y sus familias, al tiempo que les ayuda a orientarse en el sistema sanitario. Su trabajo demuestra que el acceso, la defensa de los derechos y la compasión pueden salvar vidas tanto como la medicación @UNMHSC
De «incurable» a «que cambia la vida»: la nueva era de la atención médica de la HEPCT
«Soy consciente de que soy única»: el podcast de phaware® «
», episodio 574 — Dra. Jenny Yang
¿Qué ocurre cuando a los pacientes se les dice que todo parece «normal», pero siguen sin poder respirar? La Dra. Jenny Yang explica cómo las nuevas pruebas y la atención en equipo están resolviendo uno de los misterios más ignorados de la medicina pulmonar y cambiando las perspectivas de los pacientes con HEP-CTE.
The Insurance Plan You Never Knew You Needed
I’m Aware That I’m Rare: the phaware® podcast
Episode 567 - Nicholas Kolaitis, MD
What does a lung transplant have in common with car insurance? More than you’d think. Dr. Nicholas Kolaitis shares why seeing a transplant team early, even if you’re stable, can help protect your future.
Two Rare Diagnoses, One Powerful Partnership
I’m Aware That I’m Rare: the phaware® podcast
Episode 564 - Neal McDermott and Steve Mathai, MD
Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersection of two rare diseases requires trust, early action, and deeply personalized care. This episode explores what happens when medical expertise meets patient resilience, and why collaboration and clinical trials matter more than ever in changing the outcomes of rare disease.
The Hidden Daily Battles of Pulmonary Hypertension Patients
I’m Aware That I’m Rare: the phaware® podcast
Episode 563 - Khushboo Goel, MD
Behind the clinical charts and heart catheterizations lies a world of emotional, financial, and physical challenges that PH patients face every day. Dr. Khushboo Goel opens up about what she’s learned from patients in support groups — and how it’s reshaping her approach to care.
Why the Clues to Pulmonary Hypertension Start Before Birth
I’m Aware That I’m Rare: the phaware® podcast
Episode 562 - Ripla Arora, PhD
When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene held secrets to life-threatening lung diseases. Now, years later, her early work is the foundation of a global effort to unlock the fetal origins of pulmonary hypertension.
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine
I’m Aware That I’m Rare: the phaware® podcast
Episode 561 - Jeffrey Whitsett
Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today’s cutting-edge genetic discoveries. Discover how rare gene mutations like TBX4 are reshaping our understanding of lung development and why collaboration with families is key to the next era of life-saving treatments.
How a Global Team Is Rewriting the TBX4 Playbook
I’m Aware That I’m Rare: the phaware® podcast
Episode 559 - Matina Prapa, MD, PhD and Olivier Danhaive, MD
Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive share how international collaboration is creating real-time change for patients. From newborn screening to natural history studies to rethinking how we talk about genetic testing, they’re helping create a roadmap to a cure.
How an AI Stethoscope Could Transform Global Healthcare
I’m Aware That I’m Rare: the phaware® podcast
Episode 557 - Gaurav Choudhary, MD
What if diagnosing PH didn’t require an echo or heart catheterization — but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world use cases, validation studies, and the global potential of portable, AI-powered diagnostics in under-resourced settings.
Telehealth Is Ending: What That Means for PH Patients
I’m Aware That I’m Rare: the phaware® podcast
Episode 554 - Jean Elwing, MD
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what’s at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options.
Best Practices for Managing Cough in PAH Patients Receiving Inhaled Therapies.
I’m Aware That I’m Rare: the phaware® podcast
Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease.
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything
I’m Aware That I’m Rare: the phaware® podcast
Episode 547 - Richard Channick, MD
From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think.
The One Type of PH You Can Actually Cure
I’m Aware That I’m Rare: the phaware® podcast
Episode 546 - Jenny Yang, MD
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis.
The Diagnosis Delay That’s Still Hurting Patients
I’m Aware That I’m Rare: the phaware® podcast
Episode 545 - Victor Test, MD, FCCP
Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed and how both patients and doctors can work together to catch pulmonary hypertension earlier.
Treating Meth-Associated PAH Without Judgment
I’m Aware That I’m Rare: the phaware® podcast
Episode 542 - Brandon Jakubowski, MD
Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmonary arterial hypertension. From misdiagnoses to under-prescribing life-saving therapies, he lays out the systemic gaps and stigmas preventing patients from getting the care they need.
The Face of Addiction Isn’t Who You Think It Is
I’m Aware That I’m Rare: the phaware® podcast
Episode 541 - Nicholas Kolaitis, MD
Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension is now a nationwide and global crisis. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds, including sobriety, trial participation, and successful transplant.
How Stigma Blocks Meth-PAH Treatment and How to Stop It
I’m Aware That I’m Rare: the phaware® podcast
Episode 540 - Peter Leary, MD
Patients with methamphetamine-associated-PAH often arrive at clinics already carrying heavy shame. But shame shouldn’t be part of their medical history. In this compelling episode, Dr. Peter Leary explains how stigma — from both society and providers — can delay life-saving care. Learn how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population.
The Hidden Epidemic: Meth and PH
I’m Aware That I’m Rare: the phaware® podcast
Episode 539 - Vinicio de Jesus Perez, MD
Meth-PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening.
The Hidden PH Epidemic: What Methamphetamine Use Is Teaching Us About Pulmonary Hypertension
I’m Aware That I’m Rare: the phaware® podcast
Episode 538 - John Kingrey, MD
Dr. John Kingrey exposes the rising crisis of meth-induced pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses the need for compassion in treating both PAH and addiction.